Kidney failure, a condition many people are unaware of, a condition I have had to become very aware of the past few years. My mam was diagnosed with kidney reflux disease at age 5, which later on in life developed into kidney failure.
Orlando speaks below about his experience as a patient doing Shared Care and then moving onto Home Haemodialysis.
On the 3rd of February 2017 we had the pleasure of meeting Anne Perkins and the staff of the Heeley Heamodialysis unit in Sheffield - this is her story.
Hear David's story about the impact shared haemodialysis care at the Northern General Hospital had on his life.
Home dialysis patient Michael discusses how Shared Care has helped give him a better quality of life
Paul Swift, a home haemodialysis patient from Australia, discusses his experiences of home haemodialysis.
What's it like starting out on home haemodialysis (HHD)? A team in London have been visiting HHD patients and their families to better understand their experiences of HHD. Their focus has been on how the design of the haemodialysis machine helps or hinders patients and carers, and how people stay safe at home. Although every individual and family is different, and may have received different training and be using any one of several different machines, there were many common themes that emerged across all 19 participating families.
Arrival at the new renal unit in Jonkoping Ryhov Hospital is a warm, friendly and relaxing experience. The Scandinavian timber building is modern, light and bright and set beautifully amongst old established trees and parklandesque areas of well-manicured grassland. Plenty of parking and easy access for specialized vehicles carrying wheel chairs with simple and direct access into this single story, purpose built unit through 3 access points. A feeling of quality and well thought out design is present everywhere and the automatic entry doors equipped with electronic safety systems give a secure feeling for safety and well being.
I began dialysis when I was nineteen – twelve years ago. I had PD dialysis at home for three years, but I was fortunate to then have a transplant from 2005 to 2010. It was November 2010 when I needed to transfer back to dialysis, which I started in York. This was three days a week, with four hour slots. However, the process was always far longer than four hours – a session scheduled to begin at 4pm, could result in my return home at a time as late as 00.45; four hours easily became six, seven or eight hours spent not just at the hospital, but travelling, waiting for other patients to finish and preparing for dialysis.
My name is Marianne Hawes and I have been a haemodialysis patient for eighteen and a half years. I have experienced three renal units, as a resident patient, in that time, in different parts of the country.
"Are you able to accommodate a change in your lifestyle" was the question asked of me, by my consultant, 8 years ago as my kidney's failed and dialysis loomed. I'd read about dialysis even visited the ward a couple of times as I had a close friend who dialysed there. I was prepared for the treatment, I knew about that but what caught me out was the change in lifestyle, I wasn't prepared for that and who can prepare you for that when everybody's lives are different.
This is the story of how patients with kidney failure requiring dialysis three times a week, have had their independence and confidence restored. The shared care programme aims to reverse a trend of declining patients' independence in dialysis and improve patients access to shared haemodialysis care.
Shared Haemodialysis Care is radically improving health outcomes for kidney patients in Yorkshire and the Humber. Thanks to an innovative project developed in conjunction with patients from across our region and sponsored by The Health Foundation and NHS Kidney Care, 90% of 1800 patients are now actively participating in their own haemodialysis treatment.