People being treated with dialysis after kidney failure should be offered a choice over where and what type of treatment they have, according to new recommendations from the National Institute for Health and Care Excellence (NICE) published on 3 October 2018.
The new guidance on renal replacement therapy and conservative management, recommends that depending on local arrangements and in discussion with their clinician, all patients should be able to choose which type of dialysis is right for them and whether their treatment takes place at home or in hospital.
The guidance also references existing NICE recommendations on Patient Experience in adult NHS services(section 1.3 'Tailoring healthcare services for each patient' and section 1.5 'Enabling patients to actively participate in their care').
Professor Martin Wilkie, Consultant Renal Physician and Honorary Professor at Sheffield Teaching Hospitals NHS Foundation Trust who leads the SHAREHD programme commented:
"We are very pleased that among other recommendations in the latest NICE guidance, there is a clear emphasis on enabling patients to actively participate in their own care with all that means in terms of providing appropriate education and support. This is very much in line with the objectives of Shared Haemodialysis Care where people who receive dialysis in hospitals and dialysis centres have the opportunity, choice and information to participate in aspects of their treatment and thereby improve their experience and their outcomes."
Peter Storey, Director of Communications for Kidney Research UK, who are partners in the SHAREHD programme added: "We wholeheartedly support the right of patients to make decisions about their care. Kidney failure and the need to have dialysis can be an overwhelming prospect. Our involvement in both the SHAREHD programme, and the research that led to the development of our Dialysis Decision Aid booklet by the Yorkshire Dialysis Decision Aid research team, are important examples of patient engagement and helping people to manage their own health.
The full release from NICE can be viewed here