Approximately 20,000 patients have haemodialysis (HD) treatment in the UK. They spend 4 hours three times a week 'being taken care of' by our dialysis nurses. They are passive recipients of care, with patients describing dialysis as a 'thief of time' and as a process in which they have no control in their own care.
Shared Haemodialysis Care (SHC) actively engages patients in their care own dialysis care. SHC was funded by the Health Foundation & NHS Kidney Care. It has been built with our patient partners to engineer a shift in 'control' from nurses to patients in the dialysis units.
We visited the Ryhov self care unit in Jonkoping, Sweden, described by the renal Tzar as probably the best self care unit in the world. Christian, a lone patient in Jonkoping refused to accept what was offered to him as standard dialysis. Christian worked with a dialysis nurse who taught him to be independent on dialysis. We believe that the drivers and principles of change are similar in Yorkshire.
In Yorkshire, Andy and Stephen (Stephen was part of the team that visited Jonkoping) have helped construct the foundations of Yorkshire's own self care dialysis units in Selby & Harrogate.
Selby Self care unit is a two station unit housed within Selby War Memorial Hospital out-patients area. We operate a two shift system with a maximum capacity of four patients. Dialysis staff are available via videophone if patients want any clarifications or questions answered. We opened our doors on November the 14th, 2013 with our first user, Dan and his carer Chris opting to dialyse in the unit in the evenings after work. Rachel, our second user, chooses to dialyse many times a week after dropping children off in school.
We hope our self care units will provide a home from home environment, providing self caring haemodialysis patients advantages traditionally associated with home HD.