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  • Anitta Thomas from Imperial College Hospital speaks about her experiences with a shared care patient. I would like to share my experience about Mr Parduman Matharu. I have been given permission from his family to use his story to help others understand the impact shared care can have on patients and their loved ones. Mr Matharu was a 67 year old man attending the renal dialysis unit three times a week for the past three years. The concept of shared care was known about however it was only in September 2020 that our programme actively started and I took up the opportunity to be the shared care lead in my unit. As part of my role, I performed the shared care audit which an provided opportunity to talk to the patients and generate interest in them towards shared care.  Mr Matharu refused to participate in the shared care program initially as he was quite anxious about dialysis and all the procedures in the unit. A few months later, he showed willingness to participate after observing other shared care patients. I was not entirely convinced about his ability to be involved because of his anxiety and earlier reluctance to participate. Mr Matharu asked to speak to me and expressed his interest in shared care. I informed him that he could come in 15 minutes early for his dialysis every session so that I could teach him. I was surprised to find him presenting himself at the door, at the agreed time for his next session. I was delighted to see the interest he had in learning. First, I showed him the handwash technique, however he was more interested in getting himself a full set of PPE, "because the nurses are wearing them". This was becoming more intense than I ever expected it to be. He learned the basics very quickly and progressed to preparing the table with aseptic technique and before long, was setting up the table himself for lining the machine. He was getting more comfortable in seeking my help related to dialysis which was a huge contrast from how he behaved before starting shared care. I explained the functions of kidney, dialyser, dialysate etc. and he was well on his way to becoming a professional. In exchange for my lessons, he would talk about how he was telling his kids and grand kids that he was now training to become a dialysis nurse. He was very keen to learn how to line and prime the machine, which after repeated requests, I started with him. Unfortunately, Covid was beginning to show its full fury around London at the time. This limited the opportunity to progress further with training. I allowed the patients to continue with the level of shared care they had achieved so far but was not actively teaching new techniques to further their learning. I aimed to return to teaching once Covid related problems settled down. Unfortunately, things did not play out as I intended. Mr.Matharu went on to become Covid-19 positive and passed away a short while after that. My perspective of shared care was given a positive boost when I was later contacted by the family of Mr Matharu and they told me how much he used to enjoy the new things that he was learning at the dialysis centre. They were very pleased that he found the last few months of his life more productive because of his interest in shared care. Apparently, his conversations at home included a lot about the interactions that I had with him. He had enjoyed the new opportunity to learn about dialysis and be more involved in his own health care. In the 'Thank you' card sent to me, Mr Matharu's family told me that his anxiety was much relieved due to him being allowed to take part in shared care. I hope this story will enable more nurses to realise that the impact of their actions is much more than what is visible. You have the power to change someone's life around. Contributed by Anitta Thomas, Shared Care Link at Hayes Units, Imperial College Hospital, London (April 2021)
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  • Tim Hunt updated a blog post
    Anitta Thomas from Imperial College Hospital speaks about her experiences with a shared care patient. I would like to share my experience about Mr Parduman Matharu. I have been given permission from his family to use his story to help others understand the impact shared care can have on patients and their loved ones. Mr Matharu was a 67 year old man attending the renal dialysis unit three times a week for the past three years. The concept of shared care was known about however it was only in September 2020 that our programme actively started and I took up the opportunity to be the shared care lead in my unit. As part of my role, I performed the shared care audit which an provided opportunity to talk to the patients and generate interest in them towards shared care.  Mr Matharu refused to participate in the shared care program initially as he was quite anxious about dialysis and all the procedures in the unit. A few months later, he showed willingness to participate after observing other shared care patients. I was not entirely convinced about his ability to be involved because of his anxiety and earlier reluctance to participate. Mr Matharu asked to speak to me and expressed his interest in shared care. I informed him that he could come in 15 minutes early for his dialysis every session so that I could teach him. I was surprised to find him presenting himself at the door, at the agreed time for his next session. I was delighted to see the interest he had in learning. First, I showed him the handwash technique, however he was more interested in getting himself a full set of PPE, "because the nurses are wearing them". This was becoming more intense than I ever expected it to be. He learned the basics very quickly and progressed to preparing the table with aseptic technique and before long, was setting up the table himself for lining the machine. He was getting more comfortable in seeking my help related to dialysis which was a huge contrast from how he behaved before starting shared care. I explained the functions of kidney, dialyser, dialysate etc. and he was well on his way to becoming a professional. In exchange for my lessons, he would talk about how he was telling his kids and grand kids that he was now training to become a dialysis nurse. He was very keen to learn how to line and prime the machine, which after repeated requests, I started with him. Unfortunately, Covid was beginning to show its full fury around London at the time. This limited the opportunity to progress further with training. I allowed the patients to continue with the level of shared care they had achieved so far but was not actively teaching new techniques to further their learning. I aimed to return to teaching once Covid related problems settled down. Unfortunately, things did not play out as I intended. Mr.Matharu went on to become Covid-19 positive and passed away a short while after that. My perspective of shared care was given a positive boost when I was later contacted by the family of Mr Matharu and they told me how much he used to enjoy the new things that he was learning at the dialysis centre. They were very pleased that he found the last few months of his life more productive because of his interest in shared care. Apparently, his conversations at home included a lot about the interactions that I had with him. He had enjoyed the new opportunity to learn about dialysis and be more involved in his own health care. In the 'Thank you' card sent to me, Mr Matharu's family told me that his anxiety was much relieved due to him being allowed to take part in shared care. I hope this story will enable more nurses to realise that the impact of their actions is much more than what is visible. You have the power to change someone's life around. Contributed by Anitta Thomas, Shared Care Link at Hayes Units, Imperial College Hospital, London (April 2021)
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  • Tim Hunt updated a blog post
    Anitta Thomas from Imperial College Hospital speaks about her experiences with a shared care patient. I would like to share my experience about Mr Parduman Matharu. I have been given permission from his family to use his story to help others understand the impact shared care can have on patients and their loved ones. Mr Matharu was a 67 year old man attending the renal dialysis unit three times a week for the past three years. The concept of shared care was known about however it was only in September 2020 that our programme actively started and I took up the opportunity to be the shared care lead in my unit. As part of my role, I performed the shared care audit which an provided opportunity to talk to the patients and generate interest in them towards shared care.  Mr Matharu refused to participate in the shared care program initially as he was quite anxious about dialysis and all the procedures in the unit. A few months later, he showed willingness to participate after observing other shared care patients. I was not entirely convinced about his ability to be involved because of his anxiety and earlier reluctance to participate. Mr Matharu asked to speak to me and expressed his interest in shared care. I informed him that he could come in 15 minutes early for his dialysis every session so that I could teach him. I was surprised to find him presenting himself at the door, at the agreed time for his next session. I was delighted to see the interest he had in learning. First, I showed him the handwash technique, however he was more interested in getting himself a full set of PPE, "because the nurses are wearing them". This was becoming more intense than I ever expected it to be. He learned the basics very quickly and progressed to preparing the table with aseptic technique and before long, was setting up the table himself for lining the machine. He was getting more comfortable in seeking my help related to dialysis which was a huge contrast from how he behaved before starting shared care. I explained the functions of kidney, dialyser, dialysate etc. and he was well on his way to becoming a professional. In exchange for my lessons, he would talk about how he was telling his kids and grand kids that he was now training to become a dialysis nurse. He was very keen to learn how to line and prime the machine, which after repeated requests, I started with him. Unfortunately, Covid was beginning to show its full fury around London at the time. This limited the opportunity to progress further with training. I allowed the patients to continue with the level of shared care they had achieved so far but was not actively teaching new techniques to further their learning. I aimed to return to teaching once Covid related problems settled down. Unfortunately, things did not play out as I intended. Mr.Matharu went on to become Covid-19 positive and passed away a short while after that. My perspective of shared care was given a positive boost when I was later contacted by the family of Mr Matharu and they told me how much he used to enjoy the new things that he was learning at the dialysis centre. They were very pleased that he found the last few months of his life more productive because of his interest in shared care. Apparently, his conversations at home included a lot about the interactions that I had with him. He had enjoyed the new opportunity to learn about dialysis and be more involved in his own health care. In the 'Thank you' card sent to me, Mr Matharu's family told me that his anxiety was much relieved due to him being allowed to take part in shared care. I hope this story will enable more nurses to realise that the impact of their actions is much more than what is visible. You have the power to change someone's life around. Contributed by Anitta Thomas, Shared Care Link at Hayes Units, Imperial College Hospital, London (April 2021)
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  • Marketplace shared a file
    Belfast Health and Social Care Trust - Training Booklet

    This has been developed by the team at Belfast Health & Social Care and is used alongside the Shared Care competency booklet to sign off each task.


    #patients #communications #training
    [si:me#patients/#communications
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  • Sonia Lee updated a blog post
    If you are a patient and want to get involved in research, service or quality improvement proje...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Marketplace shared a file
    What I tell my Patients about Shared Care
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  • SHARED CARE training support VIDEOS
    •   News
    •   Monday, 23 March 2020
    These videos have been created to give patients and nurses a generic view of dialysis tasks that can...
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  • Sonia Lee updated a blog post
    SHARED CARE training support VIDEOS
    •   News
    •   Monday, 23 March 2020
    These videos have been created to give patients and nurses a generic view of dialysis tasks that can...
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  • Sonia Lee updated a blog post
    SHARED CARE training support VIDEOS
    •   News
    •   Monday, 23 March 2020
    These videos have been created to give patients and nurses a generic view of dialysis tasks that can...
    1. Continue Reading
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  • Sonia Lee updated a blog post
    SHARED CARE training support VIDEOS
    •   News
    •   Monday, 23 March 2020
    These videos have been created to give patients and nurses a generic view of dialysis tasks that can...
    1. Continue Reading
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  • Sonia Lee updated a blog post
    SHARED CARE training support VIDEOS
    •   News
    •   Monday, 23 March 2020
    These videos have been created to give patients and nurses a generic view of dialysis tasks that can...
    1. Continue Reading
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  • The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Sonia Lee updated a blog post
    The recent NICE guidelines published 21st March 2020 recommend that units: 'Encourage and suppo...
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  • Marketplace shared a file
    Read Micks Story here from Middlesborugh James Cook Hospital.

    #patients #communications
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  • Sonia Lee created a new blog post, Micks Story
    Micks Story
    •   News
    •   Friday, 27 September 2019
    Read Micks Story here.    Download PDF File Here
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  • Sonia Lee updated a blog post
    Micks Story
    •   News
    •   Friday, 27 September 2019
    Read Micks Story here.    Download PDF File Here
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  • Sonia Lee updated a blog post
    Micks Story
    •   News
    •   Friday, 27 September 2019
    Read Micks Story here.    Download PDF File Here
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  • Sonia Lee updated a blog post
    Micks Story
    •   News
    •   Friday, 27 September 2019
    Read Micks Story here.    Download PDF File Here
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  • If you are a patient and want to get involved in research, service or quality improvement proje...
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  • Sonia Lee updated a blog post
    If you are a patient and want to get involved in research, service or quality improvement proje...
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  • Sonia Lee updated a blog post
    If you are a patient and want to get involved in research, service or quality improvement proje...
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  • Sonia Lee updated a blog post
    If you are a patient and want to get involved in research, service or quality improvement proje...
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  • Sonia Lee created a new blog post, Andy Henwood - SHAREHD and me
    Andy Henwood - SHAREHD and me
    •   News
    •   Wednesday, 28 August 2019
    Be inspired by this article published in Kidney Life Autumn 2018 where Andy Henwood explains ho...
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  •   Download PDF File Here read this article by Sonia lee (Oct 2018) 
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  • Sonia Lee updated a blog post
      Download PDF File Here read this article by Sonia lee (Oct 2018) 
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  •  Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Sonia Lee updated a blog post
     Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Sonia Lee updated a blog post
     Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Sonia Lee updated a blog post
     Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Sonia Lee updated a blog post
     Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Sonia Lee updated a blog post
     Read this article produced by Andy Henwood on the benefits of shared haemodialysis care and th...
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  • Marketplace shared a file
    Nurse Training (Roadmap reference no 14)

    Please find an example of a nurse training competency used in Yorkshire and Humber
    #nursetraining
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  • Marketplace shared a file
    Stakeholder Analysis Tools
    (Roadmap reference no 3)

    Please find here a presentation used within the SHAREHD learning events to discuss and teach stakeholder analysis as well as a link to a You Tube video that explains how to do things.
    #stakeholder
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  • On the 17th June 2019 a team of 4 patients partners presented their co-production journeys to d...
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  • Sonia Lee updated a blog post
    On the 17th June 2019 a team of 4 patients partners presented their co-production journeys to d...
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